Here are some resources that may help you better understand bleeding disorders and provide some information to assist you and your family.
National Hemophilia Foundation
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: (212) 328-3700
Fax: (212) 328-3777
The National Hemophilia Foundation exists to support communities all over the United States
Prevent Complications of Bleeding Disorders.
Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.
Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.
Additional Supporting Organizations and Resources
The mission of the CDC’s Division of Blood Disorders is to reduce the mobility and mortality from blood disorders through comprehensive public health practice.
2323 Colorado Avenue
Turlock, CA 95382
Phone: (888) 633-4298
Patient Services, Inc. (PSI) is the “ground breaking” 501(c)(3) non-profit, charitable organization of its kind. Over two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and copayments.
LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.
Wingmen Foundation, Inc.
1425 René Lévesque Blvd. W. Suite 1010
H3G 1T7 Canada
Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
The Resource Room provides current and searchable information on the basic science, clinical management, available laboratory and genetic testing, clinical trials, and global research initiatives for these very rare and heterogeneous coagulation disorders.
The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and adolescent girls with blood disorders are correctly diagnosed and optimally treated and managed at every life stage.
Individuals with hemophilia who are eligible for the program may receive Factors VIII and IX blood clotting factor products and related supplies such as syringes and needles when ordered by a physician.