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Resources

Here are some resources that may help you better understand bleeding disorders and provide some information to assist you and your family.

 

National Organizations


Company

Contact

Description


National Headquarters
National Hemophilia Foundation
7 Penn Plaza, Suite 1204
New York, NY 10001

Phone: (212) 328-3700
Fax: (212) 328-3777

HANDI: NHF’s Info Resource Center
HANDI Phone: (800) 42-HANDI
HANDI Fax: (212) 328-3799
HANDI Emailhandi@hemophilia.org

Website:
www.hemophilia.org

NHF National Hemophilia Foundation Logo

The National Hemophilia Foundation exists to support communities all over the United States


My_Life_Our_Future Logo

My Life, Our Future is a nationwide campaign for progress in hemophilia. Leaders in our community have come together to offer a free genotyping test, so that you may gain a deeper understanding of your hemophilia today, while helping to advance the breakthrough treatments of tomorrow.


NHF Logo Steps for Living

Prevent Complications of Bleeding Disorders.


Victory for Women Logo

Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.


Hemophilia Federation of America
820 First St. NE, #720
Washington DC 200032

Toll Free: (800) 230-9797
Phone: (202) 675-6984
Fax: (972) 616-6211
Email: info@hemophiliafed.org

Website:
hemophiliafed.org

Highlights:
Patient Assistance Programs

HFA Logo

Hemophilia Federation of America (HFA) is a community based organization that serves people with bleeding disorders and their families in the USA. With a broad mission to assist and advocate, HFA provides programs, services and policy education and support through its Member Organization affiliations as well as direct to consumers.


World Federation of Hemophilia
1425 René Lévesque Blvd. W.
Suite 1010
Montréal, Québec
H3G 1T7 Canada

Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: wfh@wfh.org

Website:
www.wfh.org

World Federation of Hemophilia

The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.


Additional Supporting Organizations and Resources


Company

Contact

Description


The mission of the CDC’s Division of Blood Disorders is to reduce the mobility and mortality from blood disorders through comprehensive public health practice.


Patient Notification System Logo

The Patient Notification System is a free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.


MedicAlert Foundation
2323 Colorado Avenue
Turlock, CA 95382

Phone: (888) 633-4298

Website:
www.medicalert.org

Medic Alert Logo

As a global charity, we focus on the well-being of others. We give you the freedom to live fearlessly, confident in the coverage we provide as the world’s most dependable medical identification and information network.


PSI Logo

Patient Services, Inc. (PSI) is the “ground breaking” 501(c)(3) non-profit, charitable organization of its kind. Over two decades ago, we recognized the importance of providing a “safety net” for patients with chronic illnesses who were struggling to keep up with expensive premiums and copayments.


LA Kelley Communications, Inc.
65 Central Street
Georgetown, Massachusetts 01833 USA

Phone: 1 (978) 352-7657
Fax: 1 (978) 352-6254
Email: info@kelleycom.com

Website:
www.kelleycom.com

LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges-when given the right tools-can overcome, triumph, and even grow stronger in character and confidence.


Website:
www.colkeen.org

CK Colburn Keenan Foundation Logo

KEENAN FOUNDATION, INC. is a charitable organization dedicated to improving the health and well being of individuals and families living with chronic illnesses, with priority placed on those living with bleeding disorders.


Wingmen Foundation, Inc.
1425 René Lévesque Blvd. W. Suite 1010
Montréal, Québec
H3G 1T7 Canada

Phone: +1 (514) 875-7944
Fax: +1 (514) 875-8916
E-mail: info@wingmenfoundation.org

Website:
www.wingmenfoundation.org

To support individuals and community members with chronic conditions through physical fitness, fitness education, advocacy, financial assistance of physical rehabilitation, and compassion.


The Resource Room provides current and searchable information on the basic science, clinical management, available laboratory and genetic testing, clinical trials, and global research initiatives for these very rare and heterogeneous coagulation disorders.


Website:
www.fwgbd.org

The Foundation for Women & Girls with Blood Disorders seeks to ensure that all women and adolescent girls with blood disorders are correctly diagnosed and optimally treated and managed at every life stage.


Individuals with hemophilia who are eligible for the program may receive Factors VIII and IX blood clotting factor products and related supplies such as syringes and needles when ordered by a physician.