Treatment Centers & Healthcare Providers
The Federally Funded Hemophilia Treatment Center of South Carolina
Clinic at Palmetto Health Richland Hospital
Children Cancer & Blood Disorders
7 Richland Medical Park Rd., Suite 7215
Columbia, SC 29203-6872
Stephanie Phillips Ambrose, MD, Director HTC
For all HTC, new and previously scheduled appointments, factor refills, school needs, general questions or general concerns:
Robin Jones, MSN, MHA, RN, CPN, CPHON
Children’s Cancer and Blood Disorders Nurse Navigator/ SC Hemophilia Treatment Center Nurse Coordinator
803.434.1028 or firstname.lastname@example.org.
Bi-Lo Charities Children’s Cancer Center
Greenville Health System
Serving Hematology/Oncology Patients
900 W. Faris Road
Greenvillle, SC 29605
Dr Nichole Bryant
Dr. Rebecca Cook
Dr. Cristina Fernandes
Denise McKenna Reisner
Hemophilia Social Worker:
Amy Bowers, SW
Dr. Jay Walls, MD
Center for Hemostasis and Thrombosis/GHS- Adult Patients
3 Butternut Drive, Suite B
Greenville, SC 29605
Medical University South Carolina (MUSC)
Department of Pediatric Hematology/Oncology
135 Rutledge Avenue
Clinic Location: MUSC Rutledge Tower, 6th Floor
Charleston, South Carolina 29425
Shayla Bergmann, MD, Assistant Professor
Director, Pediatric Hemophilia Clinic
(843) 812-5682 (C)
(843) 792-7562 (Fax)
Debbie Disco, PNP, Nurse Coordinator
Hemophilia Social Worker
Tiombe Plair, MSW, LMSW
Ming Y. Lim, MD, Assistant Professor
Division of Hematology/Oncology
Clinic Location: MUSC Ashley River Tower, 2nd Floor
25 Courtenay Drive, Charleston, SC 29425
Fax to make a referral: 843.876.1569
History of Hemophilia Treatment Centers
In 1973, the National Hemophilia Foundation launched a two-year campaign to establish the creation of a nationwide network of hemophilia diagnostic and treatment centers. The goal was to provide a range of comprehensive services for patients and families within one treatment facility. Today, there are about 140 federally funded treatment centers and programs across the country.
The concept of comprehensive care is to treat the whole person and the family, through continuous supervision of all the medical and psychosocial aspects of bleeding disorders. Comprehensive care is total care because every facet of the person is addressed, including their physical, emotional, psychological, educational, financial and vocational factors. The development of comprehensive care over the past 30 years, has greatly improved the quality of life for people with bleeding disorders, helping them to be more independent and productive. The treatment center care network has also improved patient’s overall health.
Having a chronic disease, such as a bleeding disorder, often means spending much time and effort negotiating the healthcare system. Hemophilia is a complex disorder. Good quality medical care from doctors and nurses who know a lot about the disorder can help prevent some serious problems. The hematologists, nurses, social workers, psychosocial professionals and physical therapists not only help patients with their medical care issues, but also lend tremendous emotional support. Many people with bleeding disorders use the resources of their hemophilia treatment center (HTC) for many years because the staff understands their unique needs. The treatment center not only provides specialty care but can also act as a resource to your regular family physician or dentist.
Members of the care team at HTCs may include in their Comprehensive Care Model:
- Hematologists – specialists in blood disorders.
- Pediatricians – specialists in caring for infants, young children and teenagers.
- Nurses – medical specialists in hemophilia care. The nurse is probably the person you will see most frequently.
- Social Workers – specialists who assist you with the issues of daily living, such as adjusting to hemophilia and locating resources (e.g., insurance, transportation, housing).
- Physical Therapists – specialists in activity, exercise and rehabilitation.
- Orthopedists – specialists in disorders of the bones and joints.
- Dentists – specialists in disorders of the teeth and gums. The dentists at HTCs are experts in treating children with oral bleeding problems.
- Patients and Their Families – You are also an important member of the treatment team. The staff needs your input to develop a plan of care that will ensure your remain healthy, active, and able to live successfully with added challenge of hemophilia.
Comprehensive hemophilia treatment centers emphasize prevention services to help reduce or eliminate complications. These services include using preventive medicine and connecting patients with community groups that provide education and support to families.
One of the major challenges facing researchers and scientists who work on rare disorders such as hemophilia is lack of access to uniform data. Federally funded HTCs throughout the United States can participate in CDC’s Community Counts program, which collects a consistent set of data to monitor the health of people with hemophilia. The data are used to advance knowledge and eventually impact health practices for this condition and other related disorders.
Source: This website page information was provided by the National Hemophilia Foundation and the Centers for Disease Control and Prevention