by admin | Jul 26, 2016 | Advocacy News, All News
As the mother of three children living with a chronic bleeding disorder, I understand all too well the worry and importance of having access to effective healthcare, and the stakes for those who don’t. Unfortunately, as the unintended consequence of new insurance...
by admin | May 20, 2016 | Advocacy News, All News
By Sue Martin Hemophilia of South Carolina (HSC) and Patient Services, Inc. (PSI) have had a long-time partnership in advocacy. Working together to provide hemophilia and bleeding disorder awareness, and advocating for services at our local state Capitol has been a...
by admin | Apr 4, 2016 | Advocacy News, All News
Congress Should Protect Premium Assistance for Individuals Living with Chronic Conditions Dana A. Kuhn | March 30, 2016 Congress took an historic step to prevent health insurers from discriminating against patients with pre-existing conditions when it passed the...
by admin | Feb 29, 2016 | Advocacy News, All News
HSC’s Bleeding Disorders Legislative Awareness Days March 1-2, 2016 South Carolina State Capitol, Columbia, SC By Suzanne Martin, Executive Director of HSC The 7th annual hemophilia and bleeding disorders legislative awareness days will be held in Columbia by...
by admin | Feb 4, 2016 | Advocacy News, All News
ZIKA Virus / NHF The National Hemophilia Foundation (NHF) has been working closely with the Centers for Disease Control and Prevention (CDC), the World Federation of Hemophilia (WFH) and numerous industry and healthcare organizations to monitor the Zika virus...
by admin | Jan 7, 2016 | Advocacy News, All News
Our Blog Inhibitors, SIPPET, and the Double-Edged Internet. Posted on January 5, 2016 What this is and why I’m writing it. In any type of community – bleeding disorders, family, Harry Potter Fan Club – strong communication is imperative. Communication bears the...
