Our Mission
To promote awareness of bleeding disorders to the general public; provide education and support to persons affected and their families; and to support the ongoing research of the National Hemophilia Foundation.
Our Vision
To be recognized as a leading organization providing valued services; as ambassadors of public outreach to enlighten and foster an understanding of what matters most to those affected by hemophilia and bleeding disorders; and to be our community’s first choice in partnership to achieve their highest potential through empowerment, connection to their community and being part of the solutions that affect them the most, until a cure is achieved.
About Hemophilia of South Carolina
Hemophilia of South Carolina (HSC) is a 501 (C) 3 Non-Profit organization and is a Chapter of the National Hemophilia Foundation (NHF) and a Chapter Member of Hemophilia Federation of America (HFA). HSC was founded in 1973 by a group of parents interested in promoting awareness, providing group support, and assisting other national hemophilia organizations. The organization for 42 years existed as all-volunteer; providing programs and education, support and advocacy for access to care at the states capitol. Today, HSC serves all 46 counties in the state, currently providing education and support services to over 700 members and their families in 37 counties. HSC provides the most current information and education in topics related to bleeding disorders, treatment therapies, insurance and advocacy. Today, HSC has one full time executive director and part time staff members but relies on a strong volunteer base of its board of directors and members. Without our volunteers, we could not serve our mission.
Important Documents
- Our Case Statement (Coming Soon)
- HSC ByLaws
- HSC 2016 Brochure
- 2015 990 Tax Report
- Short Form July 1 - December 31, 2014
- Fiscal Year ending June 30, 2013
- Fiscal Year ending June 30, 2012
Annual Report
*All donations are tax-deductible and our Tax ID # is 23-7400632.
National and Local Affiliations
Hemophilia of South Carolina is a Chapter of the National Hemophilia Foundation www.hemophilia.org
Hemophilia of South Carolina is a proud recipient of the Partnership Chapter of Excellence Award in recognition of our participation in shared initiatives, trainings, and programs of NHF. We are committed to the relevance and vitality of our national chapter network as we work together to improve the lives of the bleeding disorders community nationwide. We are also a proud recipient of the Programs & Services Chapter of Excellence Award in recognition of our organization’s commitment to serving individuals affected by bleeding disorders through education, community, care, and connection. Additionally we were recently awarded the prestigious Advocacy & Public Policy Chapter of Excellence Award by NHF in recognition of our commitment to advocacy and education initiatives both at the state and local level, aimed at improving the lives of those in the bleeding disorders community. Scoring in the top 15% of Chapters who participated in the review process, we are thrilled to have received these honors. We thank our legislators, treatment centers, stakeholders, families we serve, industry partners, and volunteers for helping us reach these great milestones.
Hemophilia of South Carolina is member organization of Hemophilia Federation of America www.hemophiliafed.org
Hemophilia of South Carolina is a registered non-profit organization of Greenville County.
A Proud Member of the South Carolina Associations of Non Profit Organizations (SCANPO)
Brochure
Past Presidents of HSC
(1973-2015)
- William Eichelberger
- Betty Hammond
- John Salter
- Linda Robertson
- George Dobbins
- Pete Korn
- Patty Korn
- Tommy Williamson
- Kim Wentzky
- Darin Wentzky (completed Kim’s term)
- Victor D. Fisher
- Darin Wentzky
- Rhonda Sumner
- Frank Wentzky
- Jim Hess
- Mark Eichelberger
- Lynn Warren
- Phillip Lawson
- Brandy Stewart
- Gene Feather
- Mark Eichelberger
- Brandy Stewart
- Victor D. Fisher
- Vidalia McTeer
- Suzanne (Sue) Martin
- Lisa Bordelon