by admin | Feb 9, 2017 | Advocacy News, All News
Updates on Insurance Assistance Programs Help with Covering Insurance Costs January 30, 2017 Affordability remains an issue for the bleeding disorders community. There are some excellent resources available to assist our community, whether it is to help cover your...
by admin | Oct 22, 2016 | Advocacy News, All News
MONTREAL, Canada – October 5, 2016 – One year following the expansion of the World Federation of Hemophilia (WFH) Humanitarian Aid Program, the number of recipient countries went from 58 to 63, while delivered donations reached a landmark of 100 million international...
by admin | Aug 9, 2016 | Advocacy News, All News
As churches and charities are legally shut out of helping pay people’s high medical costs in most states, congressmen and advocates are rallying to “allow charities to be charitable.” “People with chronic, rare, and acute diseases have the right to get the help from...
by admin | Jul 26, 2016 | Advocacy News, All News
As the mother of three children living with a chronic bleeding disorder, I understand all too well the worry and importance of having access to effective healthcare, and the stakes for those who don’t. Unfortunately, as the unintended consequence of new insurance...
by admin | May 20, 2016 | Advocacy News, All News
By Sue Martin Hemophilia of South Carolina (HSC) and Patient Services, Inc. (PSI) have had a long-time partnership in advocacy. Working together to provide hemophilia and bleeding disorder awareness, and advocating for services at our local state Capitol has been a...
by admin | Apr 4, 2016 | Advocacy News, All News
Congress Should Protect Premium Assistance for Individuals Living with Chronic Conditions Dana A. Kuhn | March 30, 2016 Congress took an historic step to prevent health insurers from discriminating against patients with pre-existing conditions when it passed the...