“The Carolina Crew”
Hemophilia of South Carolina and Hemophilia of North Carolina annually provides a joint teen retreat for teen’s ages 13-18 years. This event is open for anyone ages 13-18 who has either a bleeding disorder or a sister, brother or parent with a bleeding disorder. You may also bring a friend or sibling! This event provides three to four days of fun and education. This event is completely free of charge and transportation to and from the camping location is included. Teen retreats are located in North and South Carolina and usually include approximately 40 participants. An educational component is included each year on topics related to independence, job and career preparation, advocacy training and bleeding disorders education. Activities have included indoor sky-diving, whitewater river rafting, zip-lines, climbing walls, swimming, hiking, low and high rope challenges and empowerment. Our programs are often facilitated by Pat “Big Dog” Torrey with the Leading Edge Program.
2018 HSC-HNC Teen Retreat Location
3111 Sand Island Road
Rock Hill, SC 29732
Thursday – Sunday, July 5-8, 2018
Registration deadline: JUNE 4th
Once Upon a Time in Teendom….
In the Kingdom, Queendom, Theedom and Wedom of Teendom, “Once Upon A Time” is how the story still begins, but where it goes from there has a lot to do with teens, and young adults ability to take the reigns of their own experiences and tell their story from a place of confidence. What stories are teens told, by themselves or others, that might get in the way of their bigger story? In this incredibly interactive, funny, and engaging program, GutMonkey will play with the idea of how our story is often the one we need to discover, and guide participants through experiences that will help them find their story, share it in community, and use that story to navigate toward their “Happily Ever After.”
Come spend a weekend with friends – new & old! We’re planning a terrific weekend full of fun activities and sessions that will challenge you, inform you, and inspire you. Share your interests, passion, and ideas about how you can make a difference for yourself and in our community. Our programs will include self-advocacy, learning to share your story, and how to use your voice! Hemophilia of South Carolina and Hemophilia of North Carolina are offering this program to teen members free of charge. This includes lodging, busing, all meals and activities.
Transportation by charter bus is available from South Carolina leaving from the Hemophilia Treatment Center at Palmetto Health Richland Hospital on Thursday, July 5th at 3:00 pm, arriving around 5:00 pm at Camp Canaan and returning to Palmetto Health Richland around 1:00 pm on Sunday, July 8th. The Nurse on call for this event will be Robin Jones from Palmetto Health Hemophilia Treatment Center.
2018 HNC/HSC Teen Retreat: Meet the Nurse
Robin Jones is the South Carolina Hemophilia Treatment Center Nurse Coordinator and a Nurse Navigator for the Children’s Cancer and Blood Disorder Clinic. She has worked in the clinic since receiving her ADN in 2001. Since then, she received her BSN in 2004 and a dual master’s in nursing and health administration in 2015. Robin has received certification as a pediatric nurse and a pediatric hematology/oncology nurse. She is an instructor for the Association of Pediatric Hematology/Oncology Bio-therapy and Chemotherapy Provider course. Robin also provides infusion training for patients and their families. She does this in coordination with the SC Hemophilia Chapter yearly and during Camp Burnt Gin. Robin has been a staff nurse at Camp Kemo since 2001 and for Camp Burnt Gin since 2010. Camp Kemo is a week-long camp for children with cancer and Camp Burnt Gin is a camp for children with bleeding disorders. At Camp Burnt Gin, she holds a class at least twice during the week to help the children learn more about their diagnosis as well as train them on how to self-infuse.
Schedule of Events
Thursday 5:00 pm Arrival
Educational 1st short session
Team Activity Session
Night Soccer and Camp Fire
Weekend Wrap-up, good-byes
Box lunch & depart
Hemophilia of South Carolina and Hemophilia of North Carolina gratefully acknowledge the pledge of support from the following companies for the 2018 HSC-HNC Teen Retreat:
The Leading Edge Program in facilitated by “Gut Monkey”, Sponsored by Pfizer